Edi - I don't know that you'd necessarily even get face value for the tickets, since I assume people that want to see the show can get tix at the box office. However, we'd LOVE to make a donation. Can we send you the check, and what is name of the charity to make the check out to? Or is there a site where we can donate online and have it credited to this particular event?
FJL, oh we will definitely get face value for the tickets, so since they are comps, that would be 100% benefit for SMA. I am moved by your generosity of your offer to donate. Even a small donation means a lot to SMA---it shows that there are a number of people interested in seeing that research is funded. Our governor has already cut the budget of a lot of programs that would benefit these kids. We staged a rally at the capitol a few months ago. Dozens of kids showed up in the cold in their wheelchairs. The governor turned his back on them and did not want to acknowledge them. I had never heard of SMA until 5 years ago, when we found out that Quinn had it, but this is a disease I think everyone should know about:
SMA is the #1 genetic cause of infant death.
SMA is carried by 1 in every 40 people, or 7 million potental parents.
(Quinn's parents were both carriers but weren't tested for this.)
SMA affects 1 in every 6,000 births.
SMA causes dramatic loss of strength and in the worst cases, the loss of ability to swallow and breathe. The mind remains unaffected, while the muscles waste away.
SMA has been chosen by the National Institute of Health to be a model for translational research because it is the closest to a treatment or cure out of all 300 neurological disorders.
Reasearch is focusing on drugs and genetic therapies that appear to increase the functionality of the backup gene, creating greater strength in people with SMA.
If you would indeed like to donate, you can do it at our website:
http://www.fightsma.org/index.php?fam_atlantaor send a check to:
Tonya Mason
160 Wellington Drive
McDonough, GA 30252
In the area on the bottom of the check where it says "for", you would say "Absentee Buddy: Quinn".
I'm looking forward to the event---it keeps growing every year!
Thanks so much!